2017 ended as a banner year for my family, but things didn’t look great
at the start. A death sentence met us in a boxing ring, and we had to
school ourselves on fighting to live. I never thought much about the
37 million American adults who suffer from kidney disease until my husband Neil became one of them. Celebrating our first year of marriage in 2001, we learned by accident through an unrelated medical exam that my husband has
polycystic kidney disease,
an illness which causes the kidneys to fill with cysts over time,
rendering the organs unable to function properly. There is no cure.
There was nothing to do but wait for my husband’s kidney function to
decline below 20%, the point at which either dialysis or a transplant
would be considered to prolong life. It would be 16 more years before Neil would enter end-stage renal
failure, the final, permanent phase of chronic kidney disease where the
organs no longer function, and in early 2017, he joined the waitlist for
a transplant, alongside some
100,000
others in the U.S. Those on the waitlist face a three-to-10 year wait
for a deceased donor kidney, and the statistics are grim. Kidney disease
is the
ninth most common cause of death in the U.S., and while Medicare covers the cost of dialysis for kidney failure, it is an exhausting treatment process with
low survival rates. America’s kidney shortage kills
43,000 people per year, as those on the waitlist sit hoping for “the call” that an organ has become available. -->
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